Pfizer Patient Advocacy Lead Europe Rare diseases in Remote, United Kingdom

International Developed Markets Patient Engagement Lead, Rare diseases - European Remote

Location: Any European Country


The International Developed Markets (IDM) Patient Engagement Lead will be responsible to protect and enhance Pfizer's reputation amongst patients and patient groups and to deliver impactful patient programs internally and externally within the developed markets. This role positions Pfizer as a thought leader within the IDM Rare Disease Advocacy Community.

The IDM Patient Engagement Lead is an integral member of the IDM LT, regional marketing and medical organizations. This role will serve to both bring the patient voice to brand strategy and represent the division externally to Patient Advocacy Groups (PAGs), as appropriate and in alignment with Corporate Affairs. The Lead will be responsible for coordinating activities within the IDM region, ensuring they identify gaps and opportunities and leverage best practices as well as implement solutions for pain points.

He/she combines expertise and experience in patient advocacy and understanding of the patient's point of view with that of the region, Therapeutic Areas and the specific medicines. He/she is responsible for delivering a competitive advantage by integrating the voice of the patient throughout the product lifecycle within the IDM Rare Disease franchise. This position will develop, build, and sustain valued partnerships with IDM patient advocates and organizations (patient advocacy, community-based, etc.) aligned with the Rare Disease business and foster a culture that better serves our purpose of bringing therapies to patients that significantly improve their lives with a focus on patient perspectives and priorities. The Lead will be responsible for presenting product/disease/clinical data to patient groups.

The IDM Patient Engagement Lead reports into the Global Medical Lead, Patient Engagement, Rare Diseases and will be a thought partner in creating the industry-wide gold standard Patient Engagement function for the Rare Disease Business Unit.

The lead will remain current on relevant clinical, regulatory, legislative and development areas within IDMs and will share learnings amongst stakeholders. He/she is part of a working environment where colleagues always understand and exhibit customer focused medical professionalism with honor and integrity. The IDM Patient Engagement Lead brings their leadership skills, technical expertise and an in-depth understanding of patient advocacy to bear on all activities while putting the patient first within the spectrum of the Pfizer Core Values and Leader Behaviors.


  • Represent Medical Affairs on the Vyndaqel Advocacy Launch Team, ensuring key partnerships are leveraged to ensure success

  • In conjunction with the GML Patient Engagement, supports the development and implementation of strategic engagement / relationship and collaborations with PAGs, patient advocates, CBOs, patients not affiliated with structured groups and other key external stakeholders within IDMs to drive initiatives that promote the awareness and development of the therapeutic area

  • Take over Leadership of Project Shard Implementing Solutions for Patient Engagement Across the Region

  • Serve as a core member on IDM Rare Disease projects and work streams (e.g. Next Generation Patient Engagement)

  • Coordinate/Lead all Patient activities across IDM Rare, leading matrixed management level (up through President) colleagues (may eventually build a team)

  • Attend, present at and coordinate Pfizer representation at IDM PAG events in collaboration with Corporate Affairs

  • Provide input and expertise to Commercial benchmarking for IDM patient support services

  • Create and implement guidelines and best practices for interacting with PAGs within IDM

  • Create a repository of best practices engaging with patient related stakeholders across IDM that can be adapted and rolled out locally and leveraged/adapted for the overall Patient Engagement team

  • Standardize contracts for Patient activities within IDMs

  • Understand the voice of the patient through patient-facing, direct engagement with PAGs, patient advocates, CBOs, patients not affiliated with structured groups and other key external stakeholders as appropriate within IDMs

  • Landscape analysis of key patient-related stakeholders and groups within IDM focused primarily on launch and growth TAs

  • Identify, develop and execute critical external relationships with PAGs, patient advocates, CBOs, patients not affiliated with structured groups and other key external stakeholders that improve our execution and patient experiences to drive measurable patient outcomes for Rare Diseases within IDM

  • Bring patient advocacy experience and knowledge to the translation of ideas, collaborations and partnerships into practice

  • Lead and/or support the planning, design, implementation, and training of patient advocacy initiatives developed in alignment with IDM global brand strategies

  • Support overall global patient/patient advocacy strategy and guidance, training and development of IDM regional and local colleagues through toolkits and other critical resources, crisis management and information dissemination

  • Bring forward experience within IDM to support the overall strategy development of the Rare Disease Patient Engagement function

  • Responsible for relationship management of key global advocates and organizations within IDMs in coordination and alignment with other cross-functional colleagues, including Corporate Affairs

  • Ensure appropriate, honest, transparent, and timely communications with advocacy organizations

  • Ensure coordination of cross-functional, cross-country, cross-regional advocacy relations efforts

  • Ensure alignment of advocacy relationships and issues that have implications beyond IDM

  • Identify unmet patient needs within IDM through external interactions with patients and patient advocacy and help to shape brand initiatives

  • Facilitate communications between Patient Engagement and the appropriate IDM Global Medical Affairs, Commercial teams and other cross-functional colleagues

  • Provide oversight and input into key patient-related activities primarily for the launch and growth product and disease area within IDMs

  • Serve as a subject matter expert for patient advocacy issues and questions within IDMs

  • Lead or support the management of regional issues as they relate to patient or patient engagement as needed

  • Deliver regional and local patient-focused activities in support of the asset operating plan within time, cost and quality parameters

  • Lead the planning of timely, high quality execution of patient tactics to support the IDM regional/country and lifecycle plan

  • Enhance organizational success by grounding decisions in sound patient insights

  • Support the Rapid Response Team to provide patient-related expertise on current issues within IDM that potentially interface with the public and in regulatory matters

  • Proactively identify and address potential patient-related issues and ensure implementation of risk-management strategies within IDM in collaboration with team partners

  • Support the development and application of metrics within IDM to measure success in our enhanced patient focus -monitor progress against objectives

  • Share information and best practices of patient and patient advocacy engagement with cross-functional, end to end development continuum stakeholders to ensure alignment and effective knowledge transfer


  • BS required

  • Advanced degree in Health Policy/Public Health or Medical background a plus - appropriate degrees include (but not limited to) PharmD, PhD, RN, PA, NP, MS, MPH

  • Ability to present clinical/product/disease data to and respond to queries from PAGs

  • Ability to distill complex scientific information and literature to patient friendly communications

  • Demonstrable experience working in Patient Engagement (industry experience preferred; PAG experience a plus) required

  • Experience in International Developed Markets especially the EU

  • In depth knowledge of EU codes, laws, regulations, systems regarding Patients Affairs/Access

  • Expertise in Rare Disease is a plus

  • Experience with patient care is a plus

  • Highly motivated with demonstrated track record of high performance and producing outstanding results

  • Capable of comprehending and communicating in a clear, concise manner a large amount of scientific information

  • Innovative proactive thinker with demonstrated experience "moving the needle" initiating and executing next generation patient engagement initiatives within a complex organization

  • An ability to lead projects in a matrix structure and in a collaborative team environment

  • Clear networking and alliance building capabilities with an ability to influence others, and navigate the internal processes

  • Ability to develop rapport and credibility across internal and external (often senior) stakeholders, promote ideas and proposals persuasively

  • Diplomatic yet influential

  • An ability to be flexible and change agile

  • Proven ability to facilitate open discussion and debate among key stakeholders and build internal and external relationships through partnering, anticipating needs, fulfilling expectations

  • Self-starter, organised, flexible and adept at handling multiple projects and tight timelines

  • Fluency in written and spoken English required, with excellent communication skills; Proficiency in at least one additional EU language preferred


  • Ability to travel at least 50% within region and globally

  • Ability to participate in virtual meetings during non-standard business hours to accommodate geographic span

Pfizer is an equal opportunity employer and complies with all applicable equal employment opportunity legislation in each jurisdiction in which it operates.